WE PRESENTED NEW RESEARCH AT THE IACFS/ME VIRTUAL MEETING
1) Ventilatory Functioning During Serial
#CPET in People With & Without #MECFS
2) #EEG brain waveforms significantly predicted #IOM ME/CFS diagnosis
3) 2 Symptoms Accurately Identify #PEM
Read more: https://conta.cc/3kdNPjz pic.twitter.com/nmbd6ir7zE
The ME Association: A summary of the recent Norwegian paper on metabolic phenotypes in
#MECFS. Of 610 compounds that were investigated, 159 were significantly different in patients with ME/CFS.
“Emerging Options for Autoimmune ME/CFS”: Scheibenbogen at the 2021 IACFS/ME Conference
#ME #MECFS https://www.healthrising.org/blog/2021/09/16/autoimmune-options-chronic-fatigue-syndrome-scheibenbogen/ …
#MEAWARENESSHOUR #MILLIONSMISSING #LONGCOVID @DoctorsWithME
There is a HUGE DISCONNECT between what is known about #MECFS thru legit research and what the doctor, specialist, physical therapist, social worker, and any other help we try to get knows. Unacceptable we know they dont pic.twitter.com/37kScazfYy
What was written.
How it is going.
NICE and Transparency - 8 September
Still no reply to 18 questions posed
It’s really absurd:
#pwME are fighting for their lives. That is why they are called activists. OK! Then I’m an activist because I want the right treatment and not the wrong ones anymore. #MEAwarenessHour
Picture shows an activist at work, by the way.
#MECFS #Lyme #Pots &Co.pic.twitter.com/PcCGqxaC8J
How it started How it's going
Still no reply from NICE to justifiable questions.
Attention: MDs with
Call for Articles: “Autobiographical Case Reports”
If your article is well-edited (i.e. adhering to their rules, minimal English editing), there's no publication fee & it is open access
#ProtestNICE4ME demo outside NICE HQ on Mon 20 September we want YOUR videos (under 2 minutes)
Tell us how YOU feel about NICE delaying publishing the #MEcfs guidelines. Full details in @MrTopple video below & the transcription in this thread #PublishThatGuidelinepic.twitter.com/BspvxGJAgq
This would explain why these pathogens may not be found in blood.
As Dr. Nath of NIH recently affirmed at IACFSME conference, there are viruses that can only be found within the central nervous system.
#MECFS #pwME #LongCovidhttps://twitter.com/microbeminded2/status/1438909744899624961 …